2021 PATIENT AND CARER (PAC) COMMITTEE

Advisory Committee to Board of Directors of Dragon Claw Charity Limited

 

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Susan Hughes, PAC Chair, Director or Dragon Claw

Charity, Diagnosed with

Rheumatoid Arthritis in 2005, retired Career Development Practitioner, Sydney. Co

founder of Australian

Network on Disability.

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Dr. Charmaine Jones MD (AOA), Retired Palliative Medicine. Director of Dragon Claw, Co-Facilitator of Dragon Talks. Patient with Inflammatory auto-immune Arthritis Enthesitis exploring functional medicine. A proud elected member of the American AOA Honour Medical Society - the motto is “be worthy to serve the suffering”. Ontario, Canada.

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Andrew Thirwell, Lupus

Patient, Dragon Claw Board Member, Director of

Corporate Affairs of Global Pharmaceutical Company, Sydney.

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Sarah Loten,

Lupus Patient, sheep farmer, mother, wife, sister, daughter, cellist, dressage rider, and equine therapy instructor, Canada.

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Rebecca Saunders, Juvenile Idiopathic Arthritis (JIA)

Patient, Mother of 2 young children (managed

pregnancies without

biologics), Fashion Consultant, Sydney

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Dr. Robin Murray, Retired clinical neuropsychologist and educator in chronic pain management, Inflammatory Auto Immune patient, occasional Dragon Claw presenter on psychological topics and writer for DC newsletter.

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Lynda Holden, Virtual Carer of RA patient, Director of Dragon Claw, Lawyer, Nurse,

University Lecturer in Nursing / Indigenous Studies. NACCHO Advisory Committee.

Aboriginal Elder, proud

Dunghutti woman, Sydney.

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Jill Berenson, Rheumatoid Arthritis Patient, Retired Nurse of 40 years at Royal North Shore Spinal Unit, Sydney. Regular writer on Covid19 research in DC Newsletter and on the National

Consumer Advisory Committee for Arthritis Australia.

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Annette Guterres OAM

Diagnosed with RA in 2016 Retired High School Teacher, Hon Sec Aust. Bomber

Command Assoc. “RA has made life difficult, but one can still lead an active life.”

Sydney

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Jacqueline Morris Diagnosed with RA at 23 years of age. Involved in Patient Partner Program for RA to medical students in Sydney teaching hospitals. Retired Language Specialist teacher, Sydney.

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Charlotte Hill, Diagnosed with Ankylosing Spondylitis in London, UK. Nutritional

Therapist and Instructor. Writer for DC newsletter. Relocated to Australia.

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Jan Frazer diagnosed with RA in 2018 at 77 years of age. Personal trainer, actor and voice over professional, Melbourne, Australia.

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Linda Gaudet, BscPhm, ME, Partner in Caring 30 year partner diagnosed in 2015. Retired from 42 year

pharmacy career in hospitals and community. Canada

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Paul Kett Inflammatory arthritis sufferer. Co-facilitator of Dragon Talks. Retired clergy, The Anglican Church of Canada. Husband, father, grandfather. Lives in Ontario, Canada. Enjoys music,

especially choral; reading; cooking.