Introduction to Useful Resources
In this section we will load new and useful Internet links which are complimentary to what we are trying to achieve. In most cases these links are tools. For example; what's in this particular drug I am supposed to take? Clicking on to the particular topic or name below will take you to the chosen website and will necessitate you leaving the Dragon Claw site. Feel free to do so but we hope you'll come back to the Dragon!
A lot of effort has gone in to building Dragon Claw. All done by volunteers. Please just don't take and leave, join. It is free. Once you register the website almost doubles in size. Dragon Claw is a national charity registered with the Australian Charities and not-for-profit Commission with ANB 73621371775 so your donation is fully tax deductible.
List of Resources
- Where to find clinical trials (AUS)
- The British Medical Journal (BMJ) is building a useful bank of articles - All about what your patient is thinking
- The People's Health Movement
- CareBride: letting patients, family and friends share.
Specialised Lupus Blogs
Sara Gorman writes the blog Despite Lupus. Sara was diagnosed with lupus when she was 26 years of age.
Shaista Tayabali lives in the United Kingdom and was diagnosed with lupus when she was 18. After falling critically ill, Lupus in Flight became Shaista's poetic response.
Marisa Zeppieri is the founder of LupusChick.
Molly's Fund Fighting Lupus is a nonprofit organization that has the goal of changing attitudes.
Lupus LA is a nonprofit organization built by families affected by lupus.
Stacey is in her 40s, was diagnosed with lupus in 2005, and authors the blog Lupus Crazy.
Lupus Foundation of America has a blog site too. The Foundation is devoted to solving the mystery of lupus while supporting those who are impacted by the disease.