This section is about you. Sharing how the disease impacts your life, your family and your adventures is very important as it helps you develop a perspective and importantly, allows others to see that their experiences are not unique.
We would love you to tell us YOUR story. Start your story using some of the dot points below to help construct it. This will be your journal, your story and you'll have lots of space. All the stories together become a very useful community resource. We can learn from each other so write your story but please do not identify a clinician by name!
All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. If you think you may have a medical emergency, call your doctor immediately. Dragon Claw does not recommend or endorse any specific tests, physicians, research studies, products, procedures, opinions, or other information that may be mentioned on the Site. Reliance on any information provided by Dragon Claw, by persons appearing on the Site at the invitation of or by other members is solely at your own risk.