This section is about you. Sharing how the disease impacts your life, your family and your adventures is very important as it helps you develop a perspective and importantly, allows others to see that their experiences are not unique.
We would love you to tell us YOUR story. Start your story using some of the dot points below to help construct it. This will be your journal, your story and you'll have lots of space. All the stories together become a very useful community resource. We can learn from each other so write your story but please do not identify a clinician by name!