Encouraging self-care for those with Rheumatoid Arthritis and Lupus
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Managin Pain

This section of Dragon Claw attempts to look at chronic pain associated with rheumatoid disease and lupus from a number of angles, particularly from a patient’s perspective. We urge you to consider the material and always speak to your medical professional to check on your thoughts and observations.

From talking to our members and from reading research material we can make the following observations:

  • Pain can be insidious and slowly eats away increasingly impacting your mood negatively and eventually, if it is not addressed, causing major depression.
  • Pain for us can cause a lack of sleep.
  • Because our disease is on the inside we often look quite well.  It is for this reason that many GP’s fail to appreciate just how much pain we are in.
  • Many GP’s do not have much experience with moderate to severe RD or Lupus.
  • Our diseases are always associated with periods of pain, sometimes very severe pain over a long period of time.  Flares can be long or short in duration.
  • The pain can be in a number of places such as in the feat or hands, it can rotate around the body and it can move in cycles.
  • Steroids almost always relieve or significantly reduce pain. If steroids relieve pain, it’s likely tied to inflammation.
  • Rheumatoid pain can, in some cases, feel like a heart attack but it is not.
  • Many of our members have feared talking opioids to ease their pain.  This issue needs to be discussed with your clinician.
  • Trying to stoically accept the pain is a waste of time.  There is no glory in suffering.

The online electronic disease reference for doctors called “UpToDate” refers to patients with rheumatoid arthritis as having a low pain threshold.  We disagree with this broad and apparently untested position.  Indeed, we think that many of our members have developed a higher ability than “normal people” to carry pain.  The UpToDate comments lead, we believe, to GP’s under estimating the degree and severity of pain associated with our conditions.

Below you will find an expanding list of links and articles.  We have provided global and local links to organisations we consider provide useful information and support.  These will be updated from time-to-time.  The articles provide patient centric insight to various aspects of pain.  These articles will be added to on a regular basis.

Filters
List of articles in category Managing Pain
Title Published Date
Why a Multi-disciplinary Approach to Pain Management is Vital 30-05-18
Breathing Exercises Help You With Pain and Focus 23-04-18
Pain and Codeine - A Member Petition 21-12-17
Pain and Fibromyalgia Associated with RA 04-11-17
Pain Videos To Help You Understand The Complexities of Pain 18-01-17
Chronic Pain and Depression 10-01-17
Conversations About Pain Management 10-01-17
Global Pain Resources 25-10-16
Australian Pain Resources 25-10-16
Compassionate Listening 25-10-16

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All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. If you think you may have a medical emergency, call your doctor immediately. Dragon Claw does not recommend or endorse any specific tests, physicians, research studies, products, procedures, opinions, or other information that may be mentioned on the Site. Reliance on any information provided by Dragon Claw, by persons appearing on the Site at the invitation of or by other members is solely at your own risk.

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