NEWS

JOIN and get access to the Video Library and Literature Central which more than doubles the size of the public website. In addition, you will get access to a members only Forum where you can exchange your thoughts and experiences with other members. Remember to update your web browser with our new address: www.dragonclaw.net

Upadacitinib

Reported at the annual meeting of the American College of Rheumatology (ACR) in October 2018, the treatment with the oral selective JAK1 inhibitor upadacitinib was superior to placebo and the active comparator adalimumab (Humira) for rheumatoid arthritis (RA). The study was sponsored by AbbVie. The study participants were 80% female, and most were in their fifties. Disease duration was 8 years, and the baseline DAS28 was high, at 5.8. They had to have at least six swollen and tender joints.

 Lupus

The drug ustekinumab (Stelara) showed lasting benefits for systemic lupus erythematosus (SLE) through one year and may offer a new therapeutic option for lupus patients. The last agent to be approved for use in SLE was belimumab (Benlysta) in 2011, and that was the first drug to be approved in half a century.

Nutrition

In a 2013 systematic review about the associations between dietary patterns andinflammation, the dietary patterns associated with inflammation were almost all meat-based or so-called Western diet patterns. In contrast, vegetable- and fruit-based, or “healthy,” patterns tended to be inversely associated with inflammation. In general, the more plant-based, the less inflammation.  Refer to our video library for ways to develop a low inflammation diet under “nutrition”.

RA and Your Lungs

Some surprising comments under this topic in the Member's Forum.  People with RA need to look after their lungs.  Log in and select Forum then Co-morbidities.

My Health Record

The Australian Government has built a national patient health record which is an online summary of your health data.  There is lots of controversy about this and people can opt out over the next three months.  Dragon Claw has developed a humorous view on this subject.  Once registered go to the Video Library, select Things You Can Do Now, scroll down to the bottom and select Get The Information

Pain Research Centre

At the end of the day, lower back pain is more than just a pain in the back for so many Australians. Six million Australians have impacts on their quality of life, on their ability to work, and of course chronic pain can contribute to mental health impacts.” Hon Greg Hunt, Minister for Health

For the first time Australia will have a research centre dedicated to arthritis and musculoskeletal conditions. Back pain alone accounts for more than 40 percent of forced early retirements in Australia and is associated with poor quality of life, lower income and mental health issues. Low back pain is the leading cause of disability globally.

The NHMRC Centre for Research Excellence for the Australia and New Zealand Musculoskeletal (ANZMUSC) Clinical Trials Network, based at the Cabrini Institute at Monash University in Melbourne, will advance research and will enable clinicians, researchers and consumers to work together to deliver better treatments and outcomes for people with musculoskeletal conditions. The centre will collaborate with 23 universities, 21 hospitals and 10 research institutes. It will work closely with consumers and consumer organisations to shape its research agenda, and with policy makers to ensure that discoveries are rapidly translated into improved care.You can access the ANZMUSC here

Dragon Whispers and Conversations

A new menu item has been added under Here To Help.  Have a look and enjoy.

The Manifesto Of The Patient Revolution

The Patient Revolution is, at its heart, a movement based on stories. This website and publication tries to arm people to tell stories; stories about their lives, stories about their capabilities and limitations, and stories about what risks, benefits and trade-offs look like from their point of view.  In a series of brief and personal essays, Why We Revolt describes what is wrong with industrial healthcare, how it has corrupted its mission, and how it has stopped caring. Dragon Claw is about patient centricity and self help so we thought this publication may be of interest to some members and visitors. You can Subscribe here

Videos

Don't miss our extensive video collection under the main menu - Video Library.  The content covers everything from gut bugs to hand exercises.  New videos are added monthly.

Survey

ARAD is a national Australian database which collects important health information from individuals with inflammatory arthritis. If you would like to participate in the survey Go Here and look for ARAD bottom left.

Quick Reads

Want to learn about your condition but can't read scientific articles?  No problem.  Dragon Claw provides short simple summaries of some of the best and makes them available just for you the Member under the sub-menu item Quick Reads, once you have registered.

Street Art

As you move through the site and its many sections you will notice unusual art works, usually at the top of each main section.  More will be added as time goes by.  These images are street art from Sydney, Australia.  We are using these images (with permission) to make the site distinctive and memorable. We particularly wanted to move away from clinical images and happy smiling faces which are so routine these days.  Hope you like the images.